Nancy Frates Biography

On March 13, 2011 her 27 year old son Peter was diagnosed with ALS, Lou Gehrig’s Disease. Their world changed in a moment. They were told that there is no treatment or cure and the prognosis was 2-5 years. Since that day, she has immersed herself in the ALS community. Through her education and work experience, she knew that the best way to become knowledgeable and currently informed on the disease was to get to know the players and the institutions that were on the forefront on this disease.

In the past 2 years Nancy has travelled and networked to the offices of CEO’s, Senators, Congressmen, Top Doctors, and governmental authorities mostly the FDA. She have testified in Washington DC to an FDA panel and has initiated and executed petitions regarding important issues affecting the ALS communities.

Nancy has developed strong relationships with executives at both the local and national levels of the ALS Association and other organizations involved in research, patient support and fundraising. In October 2014, she was appointed as a Trustee on the ALS Association National Board of Trustees.

She along with other family members run the Pete Frates #3 Fund. This fund, started by a group of our family and friends, raise funds to aid Pete in his battle with the disease. After Pete’s diagnosis they learned that as the disease progresses, the average cost for an ALS patient to live with the disease is $280,000.00 per year. Team Frate Train, as Pete’s supporters are known, have grown over the past couple of years. They have a website, sell Frate Train Gear and run marquee events for the fund as well as supporting ALS organizations through their events.

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